Creating Change Together

At Hidden Genes Visible Voices CIC, we champion awareness, visibility, and advocacy for rare genetic conditions. Join us in making a difference today.

About Hidden Genes Visible Voices CIC

Hidden Genes Visible Voices CIC is a community interest company dedicated to fostering awareness, understanding, and positive change around rare genetic conditions and their impact on individuals, families, and communities.
Established in the United Kingdom, our organisation operates as a not-for-profit, reinvesting all surpluses into projects that support our mission.
We champion inclusivity, visibility, and advocacy, giving a platform to those whose stories too often go unheard.

50

Planned Projects 

30

Community Events

15

Key Partners

Advocacy Initiatives

Engaging with policymakers to influence positive change for individuals with rare genetic conditions.

Support Programs

Providing essential resources and support to affected families and individuals.

Community Engagement

Building a network of support through community events and outreach.

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Get in touch

Telephone:

E-mail: info@hgvv.org.uk

Address: London, London, City Of, United Kingdom

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