Privacy Policy
Hidden Genes Visible Voices CIC
Privacy Notice
Last updated: June 2026
A full Privacy Policy is in preparation and will be published shortly.
Hidden Genes Visible Voices CIC is committed to protecting your privacy and handling your personal data responsibly. This notice explains in brief how we use information you share with us.
Who we are
Hidden Genes Visible Voices CIC is a community interest company registered in England and Wales. We operate the website hiddengenesvisiblevoices.co.uk and provide advocacy, awareness, and community support for individuals affected by rare genetic conditions.
For any data protection query, contact us at: info@hgvv.org.uk